Happy New Year

New Year – New wheelchair adventures

Happy New Year 2017 my friends!

 

Today is the first day of another new year full of fresh opportunities! I’m always curious what a new year might bring along. For now I’ve planned a very nice wheelchair accessible trip with my brother in March. The destination is a surprise and I cannot reveal it yet. But I think you’ll like it as much as I do! Many new wheelchair accessible spots will be discovered soon!

 

THANK YOU to all my lovely readers for your support through your messages and your comments and for following me on my journey!

Have a wonderful year 2017 with much love, health and joy!

 

A new year is like a blank book and the pen is in your hands. It is your chance to write a beautiful story for yourself.

 

Tree at Cap d'Antibes True Story

An inspiring True Story written by life

This is a true story that happened in August 2016. Maybe you like it as much as I do.

 

On a warm and pleasant summer day, a young man went for a walk around Cap d’Antibes in the South of France. With a heavy heart and 1000 questions about life in his head he slowly walked along. The young man had been experiencing a difficult phase of self-doubt, anger and great mental suffering for weeks.

 

He sat down on a tree trunk by the sea and began a silent conversation with the universe. “What’s all this for?” he asked silently, overwhelmed by emotions. The young man sat there for a while, not moving. It occurred to him that when something in life was really meant to be, it would only take little struggle and not too much effort to achieve it. “Circumstances always seem to successfully work together to make dreams come true.”

 

As the full meaning of this idea rose in his mind, he addressed life in a challenge, thinking “From now on, just let me know if you need me!”. At this very moment a guy closely walked by… On the guys t-shirt could be read “You are ready for life”!

 

It seems as if life always listens to us!

Limb-girdle Muscular Dystrophy Awareness

My Spotlight Interview for the LGMD Awareness Day

 

Limb-girdle Muscular Dystrophy Awareness Day on September 30th 2016

 

Have you ever heard about Limb-girdle Muscular Dystrophy? I guess not? Or maybe yes, if you know someone, who knows someone, who’s child is possibly affected by another type of Muscular Dystrophy, such as Duchenne… Indeed, there’s still not enough awareness about neuromuscular diseases in today’s society. And there’s even less knowledge when it comes to Limb-girdle Muscular Dystrophy in particular. So let’s change that!

 

About two months ago I discovered on Facebook that the Limb Girdle Muscular Dystrophy Awareness Day organization was looking for volunteers who would like to share their LGMD-story in an interview.

 

Speaking about my story and sharing my experiences in the Spotlight Interview could help others to understand what it means to live with Limb-girdle Muscular Dystrophy. Maybe I can encourage other LGMD affected people around the world to not give up on life.

 

The Global Limb-girdle Muscular Dystrophy Awareness Day is on September 30th.

 

Together we are STRONGER!

 

Here is the Link to the interview : http://lgmd-info.org/2016/09/melanie-2/

 

Meeting Andrea Krallinger

A day that changed my life

 

Today I’ll tell you about a very special photo project and how this project helped me to gain self-confidence by fully accepting me and my disabled body.

 

First of all I have to admit, that I’ve had a very bad image of myself. I have never seen myself neither as a “real” woman nor I thought of me being beautiful. My body was my weird-looking capsule, rolling around in a wheelchair. Often I even felt ashamed for my strange movements caused by my limb-girdle muscular dystrophy and for being in a wheelchair. I preferred to hide myself whenever possible to not attract more attention than usual. I had no self-confidence at all and didn’t feel good in my skin. There were times when I silently cried in my bed, asking myself why I was chosen to have this mean LGMD disease. But one day in 2012 would change everything …!

 

While I was reading a magazine of the German MD Association, my eyes stopped at a text saying “Participants for special photographic project wanted”. I don’t know why, but my inner voice told me to apply immediately. That’s how I got to know the German photographer Andrea Krallinger and her beautiful project “Ganz schön krank” (free trans. “pretty ill”). Andrea, having an invisible disability herself, took pictures of people with all kinds of disorders, focussing on their beauty – not on their faults. The photos of Andrea’s models were art printed are still being exhibited all over Germany and even abroad. Each art print is accompanied by a personal introduction, written by the model, describing briefly her/his life with a disability.

 

So, together with my brother I met Andrea in August 2012 on a wonderfully warm summer day. But actually, only one day before the appointment I wanted to cancel it! I was scared and I thought that I was not good enough for Andrea’s project. I felt very uncomfortable, I didn’t even have a clue how to dress. I was simply afraid to not fulfill  Andrea’s expectations… Luckily my brother insisted on going! And so we did! On our way to the meeting I was so nervous that I couldn’t eat a thing. We met Andrea in a train station. We had a great time together and got along very well – there was no need to be that nervous. Together, we discovered a nice little park where the shooting took place. Thanks to Andrea’s guidance and her reassuring words I overcame my shyness and suddenly I felt good in front of her camera. This was my first shooting-experience. Some days later, when Andrea sent me a link to my pictures, I couldn’t believe that this young, beautiful woman was me. For the very first time I saw my bright smile and my sparkling eyes. And for the very first time I saw my hidden beauty revealed.

 

 

Thanks to Andrea’s project, I received lots of mails by interesting people telling me that I had a very positive appearance and a beautiful smile. Thanks to her I made many new friends. Thanks to Andrea I met my love Xavier only two months after the shooting. Thanks to her I had the chance to do a photo shooting for wheelchair manufacturer Sunrise Medical.

Thanks to Andrea and her “Ganz schön krank” project I learned to truly accept myself as I am! There was and is no reason to hide my smile any longer. Today, in 2016, I am a confident and joyful woman on wheels. Thank you so much for everything you did, Andrea!

– LittleMissTurtle in the German TZ news
– LittleMissTurtle is “Ganz schön krank”