Limb-girdle Muscular Dystrophy Awareness

My Spotlight Interview for the LGMD Awareness Day


Limb-girdle Muscular Dystrophy Awareness Day on September 30th 2016


Have you ever heard about Limb-girdle Muscular Dystrophy? I guess not? Or maybe yes, if you know someone, who knows someone, who’s child is possibly affected by another type of Muscular Dystrophy, such as Duchenne… Indeed, there’s still not enough awareness about neuromuscular diseases in today’s society. And there’s even less knowledge when it comes to Limb-girdle Muscular Dystrophy in particular. So let’s change that!


About two months ago I discovered on Facebook that the Limb Girdle Muscular Dystrophy Awareness Day organization was looking for volunteers who would like to share their LGMD-story in an interview.


Speaking about my story and sharing my experiences in the Spotlight Interview could help others to understand what it means to live with Limb-girdle Muscular Dystrophy. Maybe I can encourage other LGMD affected people around the world to not give up on life.


The Global Limb-girdle Muscular Dystrophy Awareness Day is on September 30th.


Together we are STRONGER!


Here is the Link to the interview :


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One comment

  • Daniel 04/09/2016   Reply →

    Eine tolle Idee, Nienchen. Vergiss bitte nicht zu erwähnen, dass trotz LGMD, nicht jeder automatisch so ein wundervoller Mensch wird wie du.

    Ich hoffe du kannst mit deiner Geschichte ein bisschen dazu beitragen anderen ihr Leben etwas zu erleichtern.

    Viele liebe Grüsse,

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