HI! Nice to meet you On littlemissturtle.com!
My name is Melanie. I’m a 31-year-old, French-German globetrotter on wheels.
If you are looking for wheelchair-accessible travel inspiration, you’ll feel right at home here!
What’s this blog about?
On Little Miss Turtle I write about travel adventures and my life with limb-girdle muscular dystrophy. I was diagnosed with limb-girdle muscular dystrophy type 2I (or to make it short LGMD2I) at the age of 4 and got my first wheelchair with 10. Over the years, my wheelchair became my best friend and it continuously keeps me moving forward towards new experiences. I have a traveller’s heart and I love to discover new places all around the world. Since the age of 16 I know that my heart is affected by the LGMD and since 2014 my respiratory muscles are, too. I decided to live my life to the fullest, to travel as much and as often as I can as long as I have the chance to do so. Carpe Diem.
What is limb-girdle muscular dystrophy?
Limb-girdle muscular dystrophy, or just LGMD, is a rare genetic muscular disorder with 34 known subtypes. The disease varies in severity. Symptoms can occur from early childhood up to adult age. It first affects the proximal muscles of the arms and legs, but finally muscles all over the body can be involved. LGMD causes mild to severe weakness and muscle wasting, which eventually leads to a complete loss of function. The heart as well as the respiratory muscles are affected in some subtypes. Nerves, other organs and the brain aren’t affected. LGMD has nothing to do with Multiple Sclerosis.
Why Little Miss Turtle?
My enduring experience in living with limb-girdle muscular dystrophy 2I has taught me to overcome fear and has set my mind free from social convictions. I would like to share my story and especially all my travel adventures with you. The name “Little Miss Turtle” came up because back then, when I was still able to walk, I moved around slowly but steadily – just like a turtle.
See you soon.